Thursday, November 28, 2019

Update 28 November 2019: Reflections on chemo, travel and retirement



Hello readers,

I’m back! My life since the last posting has been filled with travels, chemo, other medical procedures and appointments.  I had a longer chemo holiday for the month of October while I undertook my Grand European tour by rail. It was great to have that time off from chemo to regain my strength.

On the medical side, I started chemo again after my trip. I will have several more rounds which will take me to end of January. I’ll have scans at that point and the doctors will assess how effective the chemo has been and how to proceed. I have no sense at this time what the results will be but, of course, I hope for the best. I will let you know when I get the news.

(As an aside, I've tried to find a way for people to get alerts about the blog but have thus far been unsuccessful. I will post on FB from time to time but if you would like me to let you know when I do update the blog, let me know. My email is dchatsis@gmail.com.)

There was a bit of good news about treatment results. There is some fluid around my heart (pericardial effusion) for which I have been getting echo cardiograms for the last year. Normally they would drain the fluid but it’s in a place that is not easily accessible so the hope is that the chemo would help reduce the fluid. And it seems to be working! There is still a “moderate” level of fluid but this is an improvement over earlier when it was medium-large amount of fluid. This means a lower risk of damage to my heart and also I’m able to lay on my back once again. The timing, however, does raise the question of whether the chemo is causing or curing the fluid build up. We shall see!

On more fun topics, I had a lovely 4 week Grand European Tour in October, visiting friends in various capitals in Europe, travelling mostly by train. It brought back great memories of various travels in Europe. Paris was my base, where I stayed with Caroline Guimond, with whom I started in the Foreign Service. 

I travelled to Geneva to visit Leslie Norton and other friends and to see the city where I lived from 1998-2002. It’s as beautiful as ever and the fondue is still tasty.  I stopped in Berlin overnight to catch up with Marie Gervais-Vidricaire and Marc Vidricaire.  Marie was my amazing boss in Geneva and the two of them are enjoying retirement in Berlin. I then went to visit Warsaw, my first time in that country, to visit Leslie Scanlon, another member of our bookclub. It was great because her family descended for Thanksgiving so I got to meet them. I then took an overnight train to Prague (my own cabin with a washroom). In Prague, I stayed with Ayesha Rekhi, our new Ambassador, and her amazing family whom I had been with in Vietnam. I did a bit of sightseeing and got to join them for the Canadian Thanksgiving celebrations.  I then took the overnight train to Zurich and fast train to Paris. 

My sister Verla joined me for the last bit of the trip where we spent time at the family farmhouse of Sheila Coutts (another friend from when I started and fellow Ecole Caron vet). It is north of Paris and about as lovely as you would imagine. No bicycling through the village with a baguette in the basket but rest assured that we ate and drank very well.  We went to The Hague to visit Lisa Helfand, our new Ambassador, and founder of the aforementioned book club. We also checked out a bit of Amsterdam then went to Brussels to visit Maeve Collins, one of the Irish Ambassadors to the EU and former colleague from Vietnam. We were also lucky enough to get time with Kimberly Phillips who met us even though she had just arrived from Canada that morning. 

The great thing about having been in the Foreign Service is that you have friends around the world. It was such a treat to have the opportunity to visit some of them during my trip.

Beyond visiting friends, the best thing about the trip was travelling by train. I love the speed and comfort of travel that trains provide. So much easier and less stressful than flying. Other highlights included seeing the Van Gogh museum in Amsterdam, the Van Gogh light show at Atelier Lumière in Paris and the always amazing Monet water lilies at the L’Orangerie museum in Paris.

I was gone for four weeks which was a touch too long, I was happy to be home but also sad as the first thing I had to do was go for blood tests, an appointment with my oncologist and chemo. Reality slapping me in the face once again, reminding me how much my life has changed in the last two years. 

However, I must remember to be thankful for what I have. Even in the midst of all these medical problems, I am still doing well with good medical care, I have my family to support me and the opportunity to take fun trips now and again.

Apart from the travel and seeing friends, the main benefit of the chemo holiday was that some of the side effects lessened. I definitely had more energy after the first two weeks of the trip and was almost at pre-chemo levels in terms of walking. My hair grew back a bit so I’ve got a little fuzz cap going on now and some teeny tiny eyelashes and eyebrow hairs. I’m keeping my fingers crossed that the hair will stay but it looks like they are starting to fall out. 

Last Saturday was a beautiful day - sunny, 8C. I took Ginger for a walk with a friend and her dog. It would have been perfect expect a guy rode by on his bike with his dog which scared Ginger. She went after the dog and, as I was holding the lead in the wrong hand and looking in another direction, I went down. I did not break anything, thank goodness, but have a few small scapes and a stiff arm. It made me realize how careful I need to be and that my doctor was right in telling me to give up skiing and skating.

The week before last I celebrated 30 years in the Foreign Service and retired on the anniversary of the day I reported for work at the Lester B Pearson building, November 14th. I went to Ottawa to mark the day and celebrate with friends. I had the pleasure of meeting with colleagues to talk about my career and my take-aways. I also had a fun retirement party (organized by the ever-fabulous Kerry Buck) to which friends and colleagues from my time in Ottawa were invited. 

The occasion gave me some time to reflect on where I have been, literally and figuratively, over the last 30 years. Several people have asked me whether I will write a book about my experiences but I reply that I am a slow writer and too lazy so, no, I won’t be writing a book. I will try to give you some highlights in this post.

I would say that I am an accidental diplomat and unlikely Ambassador, having grown up in a modest family, in Prince Albert on the last house on the last street in the wrong part of town. I hear about diplomats from a high school classmate but didn’t know what they did (short answer - many things but always representing Canada). After law school, I wanted to work overseas, perhaps teach English or work as a lawyer but decided to write the Foreign Service exam after hearing about it from a friend.

A year later, got a call from an HR person while I was backpacking in Portugal who offered me a job as soon as I could start (very soon, as I was unemployed). I landed in the Pearson Building on November 14th, 1989 along with the fabulous Ninon Valade and we both went to work in the Social Affairs stream (immigration). My first task was photocopying binders which was a good reminder to stay humble.

After a lovely 6 week temporary duty in Nairobi (great work, safaris, beautiful beaches and best tan ever), I spend the summer studying French at a certain Ecole Caron and then went to work in the visa section in Beijing. This was one year after Tiananmen Square so it was a busy time with lots of visitor visa applications and family reunification requests. We did our best to facilitate the family reunification requests, but on the other applications, let’s just say my nickname was Madame No. For the first year, I worked 7 days a week and did not claim overtime until a friend advised me to do so. 

It was a tough job - which I frequently described as mind numbing and soul destroying. A colleague convinced me I had a future in the FS so it was thanks to him that I actually stayed in the job (eventually transferred over to political/economic stream to work in the Legal Bureau). 

I loved living in Beijing - the food, the culture, the history, the parties. As one journalist said, it was a great place to live as there was no adult supervision. I traveled a lot around the country which was fascinating though sometimes frustrating. It was a great first posting. I’ve enjoyed my time there in subsequent trips even though the country has changed enormously.

What I learned in Beijing, other than the saying “what doesn’t break you will make you stronger”, was that people in the Foreign Service can be like family and, if you are lucky, a support group. I still love seeing my Beijing friends even after all these years and I’m grateful to them (and other FS friends) for their friendship and support over the years.

My second posting was Bogotá, which was going through a very insecure period in their civil war and fight against the drug cartels. There were guys with guns everywhere and we were fairly limited to where we could travel, even in the city. So, after the freedom of Beijing, it was tough to be in a less than welcoming environment. There were some good colleagues, mostly junior ones and locally engaged, but I won’t comment on the others. All I can say is that I learned that leadership from the top has an impact on a mission, especially bad leadership.

The third posting was Miami where I continued the regional job I had in Bogotá but had the benefit of more air connections. The best part of that job was living in an apartment by the beach on Key Biscayne.

I soon transferred to the political/economic stream and started work in the Legal Bureau back in Ottawa. I had a great set of bosses who were supportive and helped me learn about a new area of law (the law of war) and human rights, including through my LLM studies which I did part-time. I worked on some really interesting and important issues, including international criminal law. There were two highlights of my time in the Bureau. The first was working on the negotiation of the landmines treaty as I was lucky enough to be the lawyer for the team. After a year of solid work, we met for the Foreign Ministers’ signing ceremony and celebrated later with a dance party. It was proof that being audacious and ambitious can succeed with commitment and hard work. The second highlight was working on the Draft Declaration on the Rights of Indigenous Peoples. I learned that I had a role to play, both as a lawyer and as an indigenous person, to help provide context and understanding to our analysis.

In early 1998, I was getting ready to move to Geneva to work at our Mission to the UN when I had my first brush with breast cancer. Those who have read my blog know that I was determined that I would not let it affect my life, including my posting. So I started chemo and radiation treatment in the summer and moved to Geneva where I continued my chemo. I threw myself into work and wanted to take on more. My boss, a very caring person, spoke to me about redistributing some of the work, telling me I had been though a very tough time, etc etc. I sat back and realized she was telling me to get a life, which was great advice. 

I worked on some interesting files, including the Draft Declaration and the Permanent Forum on Indigenous issues, and more challenging ones such as the Racism Conference. I won’t go into the details of that but I was so tired and stressed that when I got up one morning, I started crying by the time I even made it into the shower. That was an exception as most negotiations were much easier and more rewarding.

My experiences in Geneva taught me a lot personally and professionally. The most important takeaway was that you can choose to be happy. I certainly was that while I was skiing in the French Alps, hiking in the surrounding mountains or travelling in Europe. It was a lovely posting.

After Geneva, I was cross-posted to New York to work at our Mission to the UN. It was a great job with wonderful colleagues and the city is fabulous. Unfortunately, my time was coloured by the death of my father several weeks before I was to start work, and my mother the following year. It would be overdramatic to say that it was an existential crisis but as I mourned, I thought about what I wanted to do with my life. I developed a five year plan (harkening back to my time in Communist China) that included going to grad school and becoming an Ambassador.

I had some good discussions with colleagues along the way that helped, including with two UN colleagues. The first said that once both parents are gone, they are with you all the time, in your memories and your heart. The second person said that things are not as good or as bad as they seem which is always good to keep in mind.

I returned to Ottawa early and worked on human rights policy. What I learned was that being a Deputy Director is a difficult job with pressures from above and below. I also learned, from a horrible 180 review, that I was not the “natural” manager I thought I was and that I had to take care about not being a source of stress for my staff.

After a couple of unsuccessful attempts at promotion, I decided that my relationship with the department was unhealthy and that we needed to take a break. I heard about a mid-career Master of Public Administration program at Harvard Kennedy School and one on Public Policy at Princeton, as well as a Fulbright scholarship program for mid-career government employees. I thought about it, worried that I would not be successful but also conscious that I needed to make a change. One evening, I was sitting on my deck and thought I needed to take a chance. So I applied. I got into both the Harvard and Princeton programs and got the scholarship. I felt like skipping down the hallway to share my joy with others. It was such an amazing outcome.

In the end, I decided to go to Harvard. It was the best career decision to take year off and learn, reflect, and try to put things together for a way forward. It was a wonderful year - enriching, exciting, challenging. I made some amazing friends amongst my classmates and learned so much.

I returned to Ottawa to work at Indian Residential Schools (IRC) Truth and Reconciliation Commission and, shortly after, at the Privy Council Office (PCO) Social Development section. It was fascinating work, particularly at PCO Social. I got to sit in on Cabinet meetings, review policy proposals being put forward by departments (primarily Indian Affairs) and find out what the government priorities were, particularly important during the economic downturn and federal election.

One of my files was the government apology to the IRS survivors that the Prime Minister had promised. This held so much importance to me as many of my family members went to residential schools, including my father who spoke about his experiences with us. I was thrilled to be in the Parliament building the day that the PM read out the apology - another career highlight.

A manager who started work in the office brought a small desk sculpture with him that said “integrity” which he told us was an important value for him. He led by example and, having seen the contrary in others, I agree on its importance both in work and one’s personal life.

In my second year, I was asked by HR at Global Affairs to go to Kandahar, Afghanistan for the summer as the Acting Director of the Provincial Reconstruction Team to replace someone who had medical issues. Our team, comprised of civilians, did political and development work with the provincial government. It was fascinating to work with the Canadian Forces who were inspiring in their dedication to their mission.

During the summer, I was given the opportunity to apply for a job as the Chief of Staff for the Deputy Minister of Global Affairs. This was the ultimate learning experience as I saw how the department worked, or did not. The Deputy was what is called the sherpa (point person for the PM) for the G-7 and G-20 meetings so it was a busy, busy time. What I learned was the importance of focusing on priorities - and keeping a good to-do list.

Thanks to my time in that job, I was appointed as Amb to Vietnam when the job became available off-cycle. It was my first Head of Mission (HOM) job - and second tick on my five year plan. I was so incredibly moved when I was presented to the Governor General as the new Ambassador of Canada and could imagine my parents bursting with pride beside me.

It was a perfect posting for a first time HOM - an interesting country, no significant bilateral problems, great staff at the mission and a lot of interest in Canada. We received a visit from the then Governor General David Johnson on his first visit abroad as GG. The visit meant a lot of work for us but was incredibly rewarding for all of us and the embassy. We also celebrated the 40th anniversary of diplomatic relations with a gala concert and dinner, including with a circus performer. On the day-to-day work, we became active on social media which was becoming big in Vietnam. On a personal level, I was really happy to connect with people through sharing my own story. As the first First Nations woman to be an Ambassador, I learned to embrace being a role model, in Canada and in Vietnam. And, as a footnote, I got to be a judge for the Da Nang fireworks festival which was incredibly fun.

I returned to Ottawa to work on South Asia from Afghanistan to Bangladesh, a fascinating part of the world. I lived by the canal so would often walk or bike to work, which was a real treat after the chaos of Hanoi. I even skated to work a few times. It was when my cough started, heralding medical problems that were eventually diagnosed as metastatic breast cancer (see first post for a refresh).

After two years, I was appointed as Ambassador to Guatemala and High Commissioner for Belize (essentially the same as an Ambassador but for Commonwealth countries). It was a really great job with substantive issues on trade, human rights and development. It can be difficult to work and live in the country though as there can be security concerns.

What I found most shocking was how wealthy the country is yet with high levels of poverty, food insecurity and malnutrition, mostly amongst the indigenous peoples that constitute almost half of the population. As a result, our development programming focused mainly on the most vulnerable, indigenous women and youth. On a smaller scale, we were able to start an indigenous internship programme to bring in a Mayan person who could share their knowledge and expertise with the staff.

So, it was a tough job but rewarding. I had a great circle of friends which made it difficult when I had to leave 6 months early because of the cancer diagnosis. I was able to leave thanks to a supportive team at mission and HQ. And my sister Verla who went down to Guatemala to get me.

So that, in short, was my career. It was a fabulous career with interesting jobs, wonderful friends and colleagues, with new jobs and new places every couple of years. I certainly didn’t expect to end up as an Ambassador when I first started with the Foreign Service but with hard work and a certain amount of luck, it worked out. And now to enjoy retirement ...

Misc cancer articles to read

Need for research for those with MBC


How those with a first incidence of breast cancer fear recurrence (and those with MBC)


An interview with the author of “Being Mortal”


Living life with thoughts of death




The day before my trip to Europe, we saw Elton!

With former colleague and ski buddy Les in Geneva

Happiness is fondue at the Cafe du Soleil

Cool Warsaw

Sightseeing in style in Prague

With the Ambassador and her family in Prague

Not enough pictures to show how beautiful Prague is


Looks like a fibonacci broccoli



With Sheila at the farmhouse

Always on my must-see list in Paris

Metro in Paris

Van Gogh in Atelier Lumiere room


At the Mannequin Pis

With Maeve and Nick in Brussels

Verla and Tintin at Brussels train station

Ever hospitable Caroline

Early hair growth on return to Canada

Ginger checking out the neighbourhood

Elvis has left the building

Some of my support crew


The Hanoi crew

The Beijing gang

The Guatemala group

Three generations of fabulous Heinbeckers

Former DM Len Edwards and wife Margaret

Hai Anh and her family became citizens!


Wednesday, September 18, 2019

Update 18 September - Stay Strong


Yesterday I drove to Saskatoon to get my eyebrows done again, possible brain tumour aside. As you might expect, I had been feeling a bit down about the CT scan, wondering if there was something there, what the impact would be and how it would affect what I think of as “me”.  Anyway, I stopped to get some gas and as I was paying, an older lady said to me “Stay Strong!” Not to read too much into it, but she reminded me of my mother and all the other strong indigenous women in my life who, I'm sure, would tell me I need to stay strong for the long game.

Anyway, after my appointment, my oncologist phoned and said the scan showed nothing abnormal!


Such great news!

Wednesday, September 11, 2019

Update September 2019 - Stories, pictures and other proof of life


First things first, the medical update. I had a CT and bone scans recently. When I met with the oncologist last week he said that the tumours have not progressed (though no indication whether they had shrunk) and the bones seem to be stronger. I will continue taking the chemo treatment until early 2020 when there will another assessment.

I was happy with the results but, quite honestly, felt like I was waiting for the other shoe to drop. And it did this week. I mentioned to the oncologist that I was tripping a bit because of the neuropathy in my feet. After I left the appointment, his nurse called to arrange a head scan. I thought he was being cautious in case there was a brain tumour but I wasn’t worried. This week, though, I read the report of the appointment and it turns out that there may be a spot on my frontal lobe area. I should know more in a couple of weeks but it would definitely not be great news if there is something on the skull or in the brain.

Anyway, since March, I have received the chemo drug taxol once a week for three weeks followed by one week off. The side effects worsened over the months, with neuropathy (loss of feeing in hands and feet), shortness of breath, and insomnia, as well as some thickening skin. My oncologist suggested taking a break and reducing the dosage. That was a good decision as it has reduced some of the side effects.

During this time off, I went to NYC to visit friends and spend time in the city where I lived for 2 years and which I have visited since 1994. It is definitely a different place to visit when you don’t have the high level of energy. NYC - the city that never sleeps and, apparently, walks everywhere. Verla was incredibly patient, waiting for me as I caught my breath at the end of each block. 

The highlights were seeing the Harry Potter show on Broadway, as well as Klimt’s Portrait of Adele Bloch-Bauer (Woman in Gold) painting at the Neue Galleri. For those who have not seen the Helen Mirren movie about the painting, I recommend it.  The Neue Galleri has a wonderful Viennese cafe which we enjoyed. We also had lunch one day at the Met where Verla thought she saw Amy Schumer (could’ve been her). We also did some fun tacky tourist things such as the double-decker bus tour.  All in all a great trip and wonderful break from my chemo life.

Again this year, we rented a cabin for four weeks in July/Aug which was lovely. I did little other than sleep, eat, read and play games on the deck. It was a pretty amazing time, even during the colder days.

Since then, I’ve been trying to take advantage of the summer season with travels and other activities. I visited friends at their island (yes, their island) in northern Ontario and spent even more time resting, relaxing and recuperating from chemo. This past weekend, I went to the Waskesiu film festival to meet up with friends, including some from Ottawa. Actually, I’ve been been lucky to have lots of family and friends visiting these past months. I really do appreciate the effort these people made to come to Prince Albert (or even further north) - it means a lot to me.

In this world of inter-connectedness, it is somewhat reassuring that rumours still can run rampant. Apparently there was a rumour amongst some government people that I had died.  People, I will die (newsflash - we all will), just not now or for a while. I assume it will be gradual so you should have some notice unless I get hit by a bus, I suppose.  In the meantime, I plan to continue blogging as I continue down this journey, the good, the bad and the ugly. I have lots of friends and relatives and assure you that notices will be put up on FB and this blog when the time does come.

A local indigenous newspaper did a story about me a few months ago.  It’s not how I would have written or edited it, but it was good press. 
https://www.eaglefeathernews.com/education/ahtahkakoop-womans-dreams-and-determination-took-her-around-the-world?platform=hootsuite

I read this amazing book called “The End if Your Life Book Club” by Will Schwalbe. The author and his mother start a book club after she’s been diagnosed with stage IV pancreatic cancer.  It’s about life and dying but also about books and how we love them and learn from them. 

“Mom taught me not to look away from the worst but to believe that we can all do better. She never wavered in her conviction that books are the most powerful tool in the human arsenal, that reading all kinds of books, in whatever format you choose - electronic (even though that wasn’t for her) or printed or audio - is the grandest entertainment, and also is how you take part in the human conversation. Mom taught me that you can make a difference in the world and that books really do matter: they’re how we know what we need to do in life, and how we tell others. Mom also showed me, over the course of two years and dozens of books and hundreds of hours in hospitals, that books can be how we get closer to each other, and stay close, even in the case of a mother and son who were very close to each other to begin with, and even after one of them has died.“

I cried at the end of the book after - spoiler alert - the mother died. Not so much because I could see myself In that situation (though there is always a bit of that) but because I felt that I had come to know the author and the mother he loved and was proud of. And I mourned her death. And, my friends, therein lies the power of books. That your life can feel richer, sadder, or whatever after delving into the lives of fictional or real people through a book and connecting with them. 

Myths about metastatic breast cancer

Articles about “beating” cancer.
fbclid=IwAR3JhoESVGYVoat3geyasPU4FDCxxLTEVZBcSnFqOo-qmFRc5jATbZlHfI0 

This comment was made by someone in one of the cancer FB groups that I belong to. My thoughts exactly,
“Interesting article. I shared on my timeline as well. I don’t want people to say I lost my battle or I didn’t fight hard enough. What is there to fight? You take your pills, get your shots, and hope it works. That’s it. I once read someone’s post about a family member who passed from cancer and they wrote “she fought, but she didn’t fight hard enough” next time someone says that I’m going to ask them how one “fights” hard enough. Because if there’s a secret out there, I’d love to know! 🤣”

What are we afraid of? Death



Colette and I took the train to Wakaw!

My sisters who both have had breast cancer, and my niece who is going through it at this time. 

My brother

Our friend from primary school in BC and her mother (our god-mother).

Nephews putting on quite a show.

Assorted visitors at the cabin August long weekend.

Les visits PA

Visit with Kerry and family at Tyson lake for rest, relaxation, Scrabble and euchre.

Northern Ontario is beautiful

Graham and Melanie at Waskesiu film festival.

Friday, May 3, 2019

Update May 2019 - Living with chemo


What is certain? Death and taxes and your hair will fall out if you take Taxol (well, for most people anyway). With that in mind, I had some micro-blading done on my eyebrows (like a tattoo) as nothing says “I am sick with cancer” more than not having eyebrows. Priorities, people. Then I bought a wig and a pile of hats/head coverings to wear.

As Taxol is hard on the veins, I had a port inserted in my upper arm so that the vein can be accessed directly for blood tests or to receive injections. I sometimes forget I have this foreign object in my arm so it twinges when I bump it and I get creeped out. It is handy though, much easier than being poked repeatedly to find a good vein. 

For my first chemo session, I was given chair 27 of 29. It’s a remarkably quiet room given the number of patients receiving chemo at the same time. I was a bit sad thinking back to my experiences in 1998 but, as it turns out, it Is not nearly as bad as last time. Unlike then, I do not have nausea nor have I lost my appetite. The main side effects for me are bone/muscle pain and fatigue so I have hot baths and naps. Yay naps!  Extra strength Tylenol is usually adequate for addressing the pain or, if I need more, Tylenol with codeine. I had a couple of scary allergic reactions to the drug so am now on a different format.

In one of the Facebook groups for people with MBC that I belong to, someone asked when her hair would fall out after she started with Taxol. One person said after her second treatment. So, the day after my second injection, my hair (mainly the grey hair) started falling out. My wonderful hairdresser cut my hair extra short and said she would buzz it the following week. Well, then the hair really started to come out. The bathtub looked like the floor of a salon at the end of a busy day. I’ve got a lot of hair on my head but even so, it looked pretty bad as it was coming out in patches. Candace gave me a buzz cut and then I went to a hipster barber in Saskatoon and had a close shave which felt amazing. The interesting thing is that the hair starts growing back between treatments and then falls out again. The circle of follicle life. Anyhow, I am getting used to the new look although I continue to wear hats to keep myself warm. I hadn’t realized how much my full head of hair acted as a thermal cap.

Otherwise, I am getting things lined up for when I need further medical care. I have developed my Advanced Care Directives (living will) which really made me think about the end of my life. Very sobering but ultimately a useful direction for my family when it comes to that time. I’m also been connected with a palliative care team - nurses, social worker, counsellor. At this stage, I don’t require that much assistance but it is comforting to know that the team is there. Other things I need to do are look at funeral homes, services etc. I know this sounds excessively morbid but the more I think about these things now, the easier it will be for my family in the future.

For more positive thoughts, summer is coming. I am planning on enjoying the weather as much as possible. We’re renting the same cabin at Christopher Lake as we did last year. I hope this year we do not have any trees falling on the roof or bears in the yard. Just some quiet times with family.  I’ve also got a short trip to NYC with my sister Verla in June and a trip to France and Italy in October. Things to keep me going during chemo weeks.

I had a conversation with Verla a few weeks ago that gave me a new perspective on where I am right now. Rather than thinking that the cancer came back after 20 years despite the aggressive treatment I received, perhaps that treatment gave me an extra 20 years. And the treatment I am currently receiving will give me some more years.  I am not “brave” in doing this, I am trying to live as long, and as well, as I possibly can.

That’s it for now. I send you all my very best wishes.

Deborah

Some more articles to read.

The existential slap of knowledge of death:

An interesting take on chronic disease:
“Still, quite a few patients with some types of leukemia or lymphoma, prostate or ovarian cancer live for years. While in the 1970s 10 percent of women with metastatic breast cancer survived five or more years, today up to 40 percent do. Chronic disease may lack the drama of diagnosis and early treatment; even friends can get bored by mounting details. Its evolution does not conform to the feel-good stories of recovery that most of us want to read. But neither does it adhere to the frightfully degenerative plot of quickly advancing tumors.”

And my favourites, all the helpful suggestions for “cures”:

This is a lovely article by a therapist:

Finally, this is a short video on MBC done by a Canadian artist who recently died. It’s a good reminder of what is important when your time is short.

The short cut

Buzz

The wig

After the close shave. My I have a big noggin.

An obligatory cute dog shot. HOW cute is she?

Tough girl look

With Verla at the Cancer, feling jaunty in my new red beret.